Does being on transplant list qualify you for disability?

Asked by: Elaina McDermott IV  |  Last update: December 29, 2023
Score: 4.8/5 (54 votes)

The Social Security Administration (SSA) offers monthly financial assistance for people who are unable to work due to a disability. The good news is that almost everyone who requires an organ transplant will qualify for Social Security disability benefits.

Do transplant patients qualify for SSI?

Anyone that has gone through an organ transplant surgery will automatically qualify for Social Security disability benefits for 12 months from the date of surgery. All you need to do is file a claim and submit proof that you had the surgery. This is the case for all organ transplants including: Bone marrow transplant.

How does being on a transplant list work?

When a transplant hospital adds you to the waiting list, it is placed in a pool of names. When an organ donor becomes available, all the patients in the pool are compared to that donor. Factors such as medical urgency, time spent on the waiting list, organ size, blood type and genetic makeup are considered.

Are transplant patients covered under the ADA?

Although the Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act of 1973 (Section 504) prohibit discrimination on the basis of disability, organ transplant centers and medical professionals are often unaware that this prohibition applies to the organ transplant process.

What does it mean to be listed for transplant?

How am I listed for a transplant? If you have a condition leading to organ failure, your doctor may refer you for an organ transplant. A transplant hospital will evaluate you to see if an organ transplant is an option for you. It is up to each hospital to decide whether it will accept someone as a transplant candidate.

Medical Conditions that Qualify You for Disability Benefits

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How long do people stay on transplant list?

Once you are added to the national organ transplant waiting list, you may receive an organ fairly quickly or you may wait many years. In general, the average time frame for waiting can be 3-5 years at most centers and even longer in some geographical regions of the country.

What disqualifies you from the transplant list?

Absolute Contraindications
  • Major systemic disease.
  • Age inappropriateness (70 years of age)
  • Cancer in the last 5 years except localized skin (not melanoma) or stage I breast or prostate.
  • Active smoker (less than 6 months since quitting)
  • Active substance abuse.
  • HIV.
  • Severe local or systemic infection.

Are kidney transplant patients eligible for disability?

Do Kidney Transplants Qualify for Disability Benefits? Yes, kidney transplant surgery qualifies for disability benefits from the Social Security Administration (SSA). Anyone who has received a kidney transplant will qualify for disability benefits for the 12 months that follow their transplant.

Do you lose disability after transplant?

Many people do not know that if you have received a transplant, or are on the donor waitlist, you may be eligible for Social Security Administration Disability Benefits for a period of 12 months after your surgery, and you may continue to be eligible after the first year, if your medical condition continues to prevent ...

Who is not considered disabled under ADA?

Broken limbs, sprains, concussions, appendicitis, common colds, or influenza generally would not be disabilities. A broken leg that heals normally within a few months, for example, would not be a disability under the ADA.

How many people are on the transplant waitlist?

More than 100,000 people are waiting for lifesaving organ transplants. Even the largest football stadium in the US could not fit the number of patients on the national transplant waiting list.

Do you need money to get on a transplant list?

Transplant costs in the U.S.

Before transplant patients can be placed on the waiting list for an organ match, they must show proof of funding for 20%* of the cost of their organ transplant surgery. With your help, we can ensure that more patients get the help they need.

Which organ are most people on transplant lists waiting for?

Defining the need

About 83 percent of the people on the national transplant waiting list are waiting for kidney transplants and about 12 percent are waiting for liver transplants according to the United States Department of Health and Human Services.

Can transplant patients get Medicare?

Medicare offers a benefit that may help you, if you lose Part A coverage 36 months after a kidney transplant, and you don't have certain types of other health coverage (like a group health plan, TRICARE, or Medicaid that covers immunosuppressive drugs).

How long does Medicare pay for transplant drugs?

The new extended Medicare benefit (Medicare Part B-ID) covers all FDA-approved transplant immunosuppressive drugs indefinitely, no matter your age or disability status. Up to 36 months after transplant, Medicare Part B will cover: FDA-approved transplant immunosuppressive drugs.

Is kidney disease a disability for SSI?

If your kidney disease keeps you from working at even a sedentary job, you meet the medical criteria to qualify for disability benefits.

What makes a disability permanent?

If your treating doctor says you will never recover completely or will always be limited in the work you can do, you may have a permanent disability. This means that you may be eligible for permanent disability (PD) benefits. You don't have to lose your job to be eligible for PD benefits.

Does a liver transplant qualify for Social Security disability?

The guidelines state that once an individual has undergone a liver transplant, he or she will be entitled to Social Security Disability benefits for a year. After that one-year timeframe, your case will be reviewed and the determination team will check your progress and your ability to work.

How long are you immunosuppressed after transplant?

About 6 months to a year after transplant, the immunosuppression is usually lowered and the chance of side effects should be low. If you still have side effects, speak to your transplant team to either change the dose or switch to a different medicine.

How much is disability for kidney disease?

The maximum disability payment you can get for kidney disease is $3,600 per month for SSDI and $914 per month for SSI in 2023. The amounts are set by law and are the same, no matter the condition — even if you qualify with multiple conditions meeting the criteria.

Is Stage 4 kidney disease a disability?

CKD eventually leads to end-stage renal disease (ESRD), or kidney failure. You'll require dialysis or a kidney transplant to survive once you enter into ESRD. This is a significant and debilitating disease that may immediately qualify you for private and federal long-term disability benefits.

Do people on dialysis qualify for disability?

While dialysis doesn't automatically qualify for disability, you can get monthly benefits and healthcare if your dialysis interferes with your ability to work. In 2021, the Social Security Administration (SSA) approved 155,702 workers for genitourinary diseases, some of which involve dialysis.

What is the problem with transplant list?

One of the biggest problems facing transplant patients and doctors is the shortage of donated organs. Whether you're waiting for a kidney, heart, pancreas, liver, or lung, demand outstrips supply — and patients sometimes die while languishing on a national waiting list that adds a new name every 10 minutes.

What state has the longest wait time for a kidney transplant?

States with the longest wait times: 1. Alabama — 30.6 percent of candidates seeking organ transplants waited over five years for a transplant.

What state has the shortest wait for a kidney transplant?

For a person with Michelle's blood type, the average wait time for a kidney transplant in Colorado is about four years. CBS4 found that four-year wait is twice as long as transplant centers in nearby states. In Utah and Oklahoma, the wait is roughly two years. In Nebraska, the wait is only 10 months.